CCHS

Life Update – Staying Hopeful in the Midst of Uncertainty

I apologize for not posting for a while. I have been going through a lot medically and emotionally as I try to adjust to a change in my life that I did not expect to face. For those new to Vegan Kitchen Magick, I have something called Congenital Central Hypoventilation Syndrome or CCHS for short. …

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New York City – Part 8

My last two days in New York were mainly filled with doctor’s appointments to be sure that I had recovered enough to drive home. There were a few issues, but they felt they could be managed from home. This photo is at the surgeon’s office: This is Marissa, a friend who also has CCHS! We …

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New York City – Part 3

My second day in New York was amazing! I will be sharing lots of photos and four vegan restaurant reviews in my next two posts, but I didn’t have time to write them before surgery. (See Part 1 for the background story.) Yesterday I was admitted to the hospital to get new breathing pacers: I …

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New York City – Part 1

I am in New York and will be sharing some exciting news and vegan restaurant reviews in a few days! First, though, I want to share why I am here. I have a rare childhood condition called Congenital Central Hypoventilation Syndrome, or CCHS. This makes me forget to breathe, which is rather inconvenient. So, I …

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